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Roses for Results Project
Case for Action
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
• clogs the lungs and leads to life-threatening lung infections; and
• obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, due in large part to the Cystic Fibrosis Foundation's aggressive investments in innovative research and comprehensive care, the predicted median survival age for CF patients is 37 years!
Statistics
• About 1,000 new cases of cystic fibrosis are diagnosed each year.
• More than 70% of patients are diagnosed by age two.
• More than 40% of the CF patient population is age 18 or older.
65 Roses – The Story
“65 Roses" is what some children with cystic fibrosis (CF) call their disease because the words are much easier for them to pronounce. Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.
After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for 65 Roses." Mary was speechless.
He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."
Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "65 Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.
65 Roses® is a registered trademark of the Cystic Fibrosis Foundation.
For more information on CF visit the CF Foundation on the web at http://www.cff.org/
Community Project Overview
Design and create a necklace representing the Cystic Fibrosis “65 Roses” story to raise awareness and money for CF and research for treatments and ultimately a cure. The project will involve original photography of roses, ceramics, and beads to create a memorable piece of jewelry. Jewelry will be packaged with awareness materials about Cystic Fibrosis as well as personal stories of 3-5 people who have been touched by CF, either living with it or caring for someone who has it.
Why CF?
In early 2000 I moved to Milwaukee, WI. The first friend I made was Nicki. Over the years, Nicki has become the little sister I never had. Nicki was diagnosed with CF when she was 6 months old. At that time, life expectancy was 15 years old. Nicki celebrated her 32nd birthday last December.
Nicki is the most compassionate and giving person I know and is always involved in a charitable cause. On any given day she will tell you about her activities with CF, Lymphoma, or organizing a company wide Thanksgiving food drive or Holiday toy drive for a family in need. Nicki
touches everyone she meets and is a very important person in my life and in the community.
The Roses for Results project will support research for CF and ensure Nicki and others living with CF live longer lives. Someday CF will be nothing more than a few letters of the alphabet because with funding a cure will be found.
wendy
wendy